Comments and Update

After posting the 7 month update, I found out that some people who wanted to comment couldn't. So after checking the settings, I've changed some things. The ability to publish comments should be open to everyone now. Please feel free to make a comment whenever it suits your fancy. We love hearing from folks.

So far things have stabilized since starting our 3rd round of steroids last week. Mason is needing 3/4 to 1 liter of oxygen most of the time. He still isn't quite as happy go lucky as he was when we left the hospital a few weeks ago, but at least things are stable. We got our authorization from our insurance for the swallow study, so we are going to try to get that done this week. It will be nice to finally, once and for all, determine if Mason's reflux is contributing to this so that we can make some decisions.

Mason continues to get stronger with his motor skills. He's rolled over from his stomach (almost intentionally) a few times when he's not quite so mad about being on his stomach; he's got the hang of rolling from his back to either side; and he has sat without support from us a couple times if we've helped him prop himself on his hands just right. I am amazed at his resilience. Mason continues to do all the "normal" baby things while struggling so hard to breathe. I can learn a lot from his strength!