We made a little bit of progress today. Well, I should say Mason did. His oxygen need is fluctuating a little bit more today - at times he is down to 1 liter (still high for him) and at times it is back up to 1.75 liters. I call this progress because before last night, he was needing 1.75 liters all of the time. They never did do the viral test, but felt that it was not really needed as a virus was not a likely answer. We did get more information about the plan. Seems that all are in agreement that the surgery needs to happen, we just need to figure out what the best timing is. We will be having our care conference with Mason's GI doctor, lung doctor, pediatrician, and hospital team tomorrow and will likely have some decisions made. We have a mile long list of questions and concerns to share with them and hopefully will get everything addressed before long.
For now, we'll just continue to wait and see. Feels a little like all those weeks Mason and I spent in the hospital before he was born.......
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