It's amazing, but its been nearly 2 weeks since the last post and I got nothing (well, I guess I can write about nothing, too). We've been hanging in there, riding out the teething wave, coasting on a little more oxygen because of the pain, and trying to wean a little more with the steroids. Mason's now getting the steroids just once a day and seems to be doing ok with it. Last week when we changed from 2x/day to 1x/day, we did see a jump in his oxygen need (more than we like, but not so much that we're worried), so we decided to hold steady for a little longer than planned.
Well, I guess we did have one big thing over the last couple of weeks - Mason qualified for Early Intervention. This is a program through the county that is related to the Special Education programs once kids get to school. It allows for a physical therapist to come into our house weekly to work with Mason on his developmental milestones (crawling, standing, walking) as well as his speech (he's still not babbling like he should at this age). The best news is that his cognition (thinking) and social skills were just about normal for his age - not his adjusted age of 10 months, but his real age of 12 months. We are so encouraged by this news because it means his physical delays are really related to his lungs, not his brain! He's thinking almost like a 12 month old even if he can't move like one!
We've got a very fun Easter weekend planned with lots of family events. I realize that Easter moves around from year to year, but as I was driving into work yesterday, I started thinking again about Holy Thursday and Good Friday last year - the night I went into labor and the day Mason was born. We spent his first Easter in the NICU with Mason on the ventilator and not knowing if he'd make it to the next week, much less next year's Easter. We were finally getting used to the idea of the machines and took a video of him with all of his equipment to share with the rest of the family who was celebrating Easter together. Now, this year, Mason is doing "well" and will get to dig into his Easter basket on his own. We have been so blessed!
We hope you all have a wonderful Easter with friends and family!
1 comment:
It was so wonderful to see you and Mason yesterday at the family gathering. What a terrific family to be a part of - we are blessed. As I know you can relate it was so nice to get back out and spend time with people we love - although it still hard for me to completely relax as there is still so much flu/illness going around - but looking forward to those feelings soon passing. With love and prayers - Happy Easter God Bless you all. Linda
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