The "Devil" Is in the Details

Today started out pretty rough, increased oxygen need, more puffiness, and the IV didn't allow for the blood draw. Turns out Mason's fluid level got too high again, but after a scheduled dose of lasix, Mason peed off between 10 and 11 ounces (yes, ounces) of fluid and started to do much better. Then, for the afternoon blood draw, the IV was willing to give up the blood so we avoided another poke. Hallelujah!! The doctors tweaked his medications (potassium and chloride most notably) a little bit based on his lab results, but no major changes for the day. Mason is doing well right now on 4.5L of oxygen and may be able to get turned down a little more before the night is through. It's looking like we're getting closer to the right recipe for his diuretics and supplements.

We did have to spend Mason's 2nd Halloween in the hospital, but on the bright side, he got a lot more "He's so cute" comments than he would have sitting at home. Mason dressed up this year in a costume that was befitting of his mood today - a little devil. Cutting teeth while being cooped up in a hospital bed for 5 days is probably not the best for a toddler's mood (despite what the pictures may indicate...)

Finally, we've got the devil behind bars!

Mason's mastered the art of waving "Bye Bye" while in the hospital (lots of practice with the number of people coming in/out). Of note, the "cast" on his arm is just keeping the IV safe from little hands getting ahold of the tubing.

Did you know devil's have bat wings? I sure didn't, but man they were cute!

And now back to reality: Tomorrow will probably be a day without major changes. We've asked the doctors to give Mason a break from chasing his labs for a day to see how he does. We know that he typically needs a couple of days to accommodate to a change. Since no major changes today, tomorrow will be his 2nd day. Then, on Monday, we'll start to explore what to do with the food issue.