Don't We All Need a Little More Fat?

For the last 31 days, Mason has been weighed just about daily. Normally, a baby grows a little bit every day or at least gains weight over the course of a month. Unfortunately, despite the increase and concentration of calories, Mason has not gained weight over the last month. So, for the 2nd day in a row, we are increasing his calories by adding even more fat - well, microlipids really. Don't I wish not gaining weight was a problem I had. I can think of a lot of foods with a lot of fat that I'd feel much less guilty about...

Mason had somewhat of a rough night last night. He was clearly working harder to breathe and needed 3.5 to 4L of oxygen all night - quite the jump compared to the 1.5L he had needed the night before. This morning, he again needed more oxygen (around 5L when he awoke), but thankfully, the coughing was a little less and there was far less wheezing. The doctors once again ordered an extra dose of lasix to help him get rid of fluid. Throughout the day, he was calmer than yesterday and somewhat more comfortable. When I returned from going in to the office for a few hours, Mason was only needing about 3.5L of oxygen - much better than when I left.

It sure does seem that each day is its own and we never know what to expect with Mason. Every day I awake and wonder how much I'll need to turn up his oxygen, how much his teething will affect his breathing, and whether or not it will be a good day or bad day for him. I am so thankful for days like this when he seems fairly happy and we end better than we started. It's so great to continue to hear him laugh, to give him a high 5, to see him signing the word "more" when he wants more ice water on his teething towel, and to hear him babbling about whatever he is doing. It's amazing to me that despite the fact that he's basically been in a cage for the last month, he is continuing to develop his communication, his fine motor, and his gross motor skills. It makes his PT mama very proud!