Once again, Mason and I were up pretty darn early this morning. For some reason, if he wakes up when the nurses or CNAs take his blood pressure and temperature at 4am, he thinks its time to play. Unfortunately, at that point, there's only Mama to play with. Try as I might, he refuses to go to sleep, and instead, will stand at the siderail of his crib, wave his hand, and laugh all in an effort to get Mama out of bed. Very cute, but really not fun. This morning, he stayed awake long enough that it was time for another blood draw, and by the time that was over, there was no sleeping for Mama. For Mason, it was another story. At about 7am, he went back to sleep and kept sleeping until about 10:30 or 11. It was actually nice to have some down time for Mama. Our nurse was wonderful and stayed away until Mason woke up. Our doctor was even better and agreed that we no longer need the 4am vitals. So, hopefully, we can get a more complete night of sleep (I know I need it!!)
Other than the events of this morning, today was another low key day. We discouraged the doctors from changing Mason's medications once again in hopes that we can focus solely on his food at this point. Only changing 1 thing at a time seems very instrumental in figuring out what is going right and what is going wrong. Mason tolerated the restarting of his food into his stomach without a problem today. We're hoping this trend continues, but have our back up plans in case it doesn't.
Tomorrow, Mason will begin the prep work for a nuclear medicine study in which they will put some dye into his stomach and then wait and take a chest xray or some other type of scan on Thursday see if they dye has crept into his lungs. This should give us a good idea if aspiration is something we should be worried about and whether or not we need to pursue intestinal feedings.
Also on Thursday, we'll have another care conference to help get all of Mason's doctors on the same page. There are apparently some different opinions about the medications Mason is on, what caused this hospitalization, and where we go from here. As it was last time, it will be good to have all in the same room so that everyone hears the same answers. Bill and I are looking forward to the meeting.
Until tomorrow, hope y'all have a good night. Thank you for the continued thoughts and prayers. We appreciate every one of them!
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Dear Ones, Wherever do you find your strength. We are so sad for what you and your precious little son are going through. He does make a very cute little devil though! Our hearts and prayers are with you, sherry and rick xxoox
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