The good news is that Mason's oxygen need did not go up today. We can pretty safely say that the extra dose of lasix yesterday curbed the increasing fluid. However, he didn't get much better today after yet another extra dose of lasix. By evening, he did need a little less oxygen and now that he's sleeping is back down to 2L -- not back to baseline, but not much better, either. We are hoping that tomorrow the nephrologist (kidney doctor) will ok going up on Mason's daily dose of lasix and give us some guidance on how we can manage this better at home. It amazes me how much difference we see between the last 2 doses of lasix. When Mason was on 0.4mL 3x/day it really dried him out; now that he's on 0.3mL 3x/day, his lungs get wet again. Guess it's a good thing we're doing this in the hospital! I wonder if there is a happy medium???
Mason seems to be tolerating his food better and better, too. At first it was causing quite a stir in his digestive system, but that seems to be settling down a bit. Over time, he'll get used to the very concentrated formula.
All in all, today was another wait and see kind of day. Hopefully tomorrow will bring some improvement so that we can look toward a plan to go home.
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