Maybe We're On To Something

The oxygen need is down. The IV still works for blood draws. The agitation is subsiding. The coughing seems to be better. Maybe we're on to something...

For the since November 7th, Mason is back to baseline! For the most part, he needed 1.5L of oxygen last night, though he did have a couple of times when he needed more momentarily. Today, we only had to go up as high as 3.25L when he first woke up and were able to turn him down under 3L before noon. Yesterday, I had to turn him up to 6L after doing the TOBI nebulizer (antibiotics), but since stopping that medication, he's doing better.

We have been protecting Mason's IV with everything in our power so that we could keep it long enough for the steroid burst, but even more so that we can save Mason from all the lab draws. Thanks to all of that care, the IV is still working well for drawing blood. Hopefully it lasts for a few more days or at least until we decide he doesn't need any more lab draws!

Slowly, but surely, the agitation Mason had on Friday after the 2nd day of his steroid burst, has subsided. He was a little upset a couple of different times, but generally happy and wanting to play. This morning, Clifford the Big Red Dog was on TV and the dogs on the show started barking. Mason thought this was the funniest thing and for the next hour or so was saying "dog" over and over and over again, just cracking himself up. It was good to see him laughing again.

Mason awoke with his productive cough once again, but after getting through the morning gunk, he was doing much better. The lung doctor though that this might be residual from the TOBI nebulizer and should continue to improve. He was encouraged that Mason was loosening up some of the gunk in his lungs.

Things finally seem to be moving in the right direction. Mason is making some really good progress with his breathing and his mood. Lest we get too excited, though, we must remember that we are looking for a lasting improvement. The next 2 days will be telling as to whether or not this treatment worked. Please continue to keep us in your thoughts and prayers and help us keep our hopes up that the next 2 days will see continued improvement or maintenance of the improvement we've seen.