As "planned" we arrived back at the hospital today to start our 2nd round of Pulse Dose steroids. Unfortunately, plans never seem to go quite like they are supposed to whenever Mason is concerned. As I write this, an hour after Mason's regular bed time, we are still awaiting the team with advanced training to come and start an IV for Mason so that he can start his 2nd Pulse Dose of steroids. I should give some credit to the system, one of the members of the team that was on 6 hours ago did try, but after 3 attempts, she gave up and said she would send someone else from the team. So, 6 hours later, 9 hours after checking in, we are still waiting to start the steroids. Sure am glad we spent the day waiting.
On the positive side, we are back in the big room we left when we discharged 2 weeks ago. The nurses are wonderful and worked it out so that it was available for us a few hours after we arrived.
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I never posted the first part of the message and now I'm back writing at 10:45 pm. Another couple of people from the team showed up to try to start an IV and once again, unsuccessful after 3 tries. Very frustrating. Still no steroids. Now, they'll call anesthesia to see if they can start an IV. Hopefully, sometime before midnight, we can start the steroids. After all, it's what we came for nearly 10 hours ago.
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3rd update - 11:50 pm. No IV tonight. Won't start the steroids tonight. Anesthesia will come and try tomorrow. I'm awaiting a conversation with the doctor to make sure that we are 1st on anesthesia's list tomorrow so that we don't spend a 2nd day waiting. Very frustrating day.
By the way, today marks the 2nd anniversary of the day that Bill and I found out that I didn't have enough amniotic fluid and that our son may not survive to be born. It is amazing how much has happened in those 2 years. We have plenty of frustrating days like today, but are so blessed to be a part of his life. He is truly an amazing child with an infectious laugh, a fantastic smile, and the best disposition I've ever seen in a kid. I know, I'm biased, but I have proof. All of the nurses chomp at the bit to make sure everything is perfect for Mason when he comes to the hospital. They line up to work with him and all come by to say hi when we are here. We are so lucky!!
We love you, little dude!
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