In Search of the Perfect One

Thankfully, for the 2nd year in a row, Mason was home for a short time in early December, so we were able to go on our annual search for the perfect Christmas tree. We were blessed with beautiful, clear, really cold weather. We bundled ourselves up as much as possible including socks on Mason's hands -- guess we overlooked the need for mittens -- oops! Despite the cold, a good time was had by all and 2 perfect trees were found -- one for us and one for Staramama and Pomp-pomp. Mason's been doing pretty well since starting on the higher maintenance dose of steroids early last week. His breathing has eased quite a bit, he's not working nearly as hard to breathe, and he's generally much happier. We go in this Friday for our 2nd 3 day Pulse Dose of steroids (the 30 mg/kg/day). We are hopeful that after several of these, his maintenance dose of steroids will come down and his lungs will see some overall improvement. We are eagerly awaiting that day!