As we make our way toward Wednesday to hopefully have a successful tracheostomy surgery, we are so thankful for days when really nothing happens. It doesn't make for interesting reading, but it makes for calm in our storm.
We were able to wean Mason's nitric oxide to 3 today with so so results. As he continues to get the GoLytely (aka Colon Blow), he is moving stuff through his stomach so fast that it is possible his medications are not getting fully absorbed. As such, he may not tolerate weaning the nitric as well as he would otherwise. The PICU doctors are really pushing for getting off of the nitric oxide before surgery, but the cardiologists agree that if he needs it, he needs it. Until he becomes truly "stable" and we see what his pulmonary hypertension does while stable, we cannot know whether or not he can be off of the nitric.
Once again, until about 5:00 this evening, he did well with a wean on his oxygen concentration to 65%. His need for more or less oxygen varies throughout the day, and it seems that right around 6am and 5 pm, he needs more consistently. Not sure what the differences are, but we'll continue to pay attention and see if we can help him be more steady.
I actually felt secure enough in Mason's stability to return to work for some of the day today - make-up on and everything. It's hard to believe that life continues to go on outside of our little PICU room, but somehow it does. I remember feeling this way when I was on bedrest and when Mason was in the hospital. How quickly we become consumed with our own lives! While it was nice to get away from here and return to that "real world" for a bit, it was really hard to concentrate on anything other than wondering how Mason was doing and wondering if today was going to be a "good" day for him. I was so thankful to find out that it was in fact a "good" day. Please pray with me that he has a good night, a good day tomorrow, and that surgery happens as scheduled and is successful!!
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4 comments:
Great Staramama says to pray to St. Jude. He is the saint of difficult causes.
St. Jude please keep our little guy safe. And please let his surgery be successful.
We love you
Staramama and Pomp pop
Christi, I know exactly what you mean! Boring days *are* good days, and I'm so glad Mason had one Monday.
And I remember, too, the tunnel vision that comes with a long hospital stay. I think you're allowed some "being consumed with your own life" right now. Life goes on outside the PICU, but your lives are centered in that little room right now, and that's natural and right. Don't be too hard on yourself.
I'm still praying!
Thinking of you and praying for a successful surgery tomorrow.
Corrine
C & D are praying with you for a peaceful night and a successful surgery, the hand of God on the surgeons and nurses. And God's blessings on all of you.
Love, Curtis & Denise
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