I am happy and proud to say that Mason had a "good" day today. He has been at 62% oxygen concentration all day and has been saturating in the mid 80s to low 90s most of the day. He took another dip in saturations right around the nursing shift change, but has still been holding fairly steady.
Events of the day: Mason finally got his neck line out today without problem - other than he was quite ticked at the nurse, he got a second PICC line to help with all of his IV medications, and we started yet another medication by way of a patch - Clonidine, a sedative. The idea of the patch is to give Mason a much more steady dose of sedative throughout the day so that he didn't have all the ups and downs with the bursts of sedative that they had to give with all activities. He seems to be tolerating it well and hasn't had as many wakeful spells since starting it.
The best news of the day is that when he does have his times of trying to "wake up" despite the onslaught of medications, he is not desaturating as much. No more "death spells" - yes, that's what they called the major desaturations that Mason had when he would wake and desaturate to the 40% or 20%. We are very thankful for every ounce of progress!
Finally, thank you to Anne and Erin for putting together the MealBaby website (see the post below for details). We are so thankful for and humbled by all the help we have received.
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2 comments:
Christi and Bill,
Praying for continued positive updates. So thankful for the miracles we are seeing in Mason's life. So thankful that you and Bill are experiencing some much needed improvement in Mason's condition. It helps to keep you going. We continue to pray for you all.
Kristie
Soo glad to hear that Mason is making progress. You all continue to be in our thoughts and prayers.
Rebecca
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