The Fighter

In true Mason style, today was a day of fighting, playing, and cuddling. He awoke this morning with a smile (after having been up for a few hours last night) and had a good time playing with his Staramama. After some good play, he had some great cuddle time with Staramama, but when we attempted to put Mason back in his crib, the fight was on. He only wanted to play or cuddle, and had no interest in falling asleep, despite low saturations.

Finally, after some good cuddle time with Mama, Mason finally fell asleep, but only for a short while. This time, though, he woke himself up by sitting up. I'm pretty sure he didn't realize what he was doing or that he would even end up awake, but apparently, it was time to play. Despite continued saturations low enough and carbon dioxide high enough to cause any of us to sleep all the time, Mason really wanted to play. He played with his rings, he played with the rubber balls, and he played with any syringe that was handed to him. We could tell his body wanted to sleep, but his spirit continued to play, laugh, and smile. What an amazing fighter!

I fear we are very close to the end for Mason. We cannot turn up the oxygen any more and are only able to maintain ok saturations when he's sleeping. I once again pray for peace and comfort for our little fighter and hope that the time we have left continues to be full of play and cuddles.