Never a Dull Moment

We awoke this morning to the nurse coming in saying: "We're going to have to move Mason to another room. The sign outside your door just sparked and then let out a bunch of smoke." My initial response (in my head at least): "You've got to be kidding me!" Yes, it's true. There's never a dull moment in Mason's life! Well, we ended up moving down the hall for about 6 hours (we could have moved back after about 3, but Mason fell asleep for another 3). During the events of this morning, we were reminded how much better it is to be in a bigger room. It was so great to get back in our own little home.

Mason's oxygen saturations continue to fall and he's sleeping more and more. He sleeps for an hour 2, then its up to join the party and have a good time for 15 - 30 minutes. Those wakeful times were spent playing with the rubber balls, throwing things off of the end of the crib to get a reaction, and smiling and laughing with his grandparents and aunt and uncle. It amazes me how his saturations can be so incredibly low, yet he can be sitting at the edge of the crib with a smile on his face and have enough energy to play to the crowd. When we tell the stories of his saturations and play time to nurses and doctors around here, they are amazed. No one they've ever worked with or known has had saturations that low and been awake, much less awake and playing.

Mason's resilience, determination, stubbornness, strength and ability to have fun while the worst is happening continue to inspire me. In my lifetime can only hope to be half the person he has become in just 2 short years. What an amazing little boy!