Play Time On the Eve of His Birthday

We continue to be "blessed" with several hours of play time every night. Mason has decided that time to wake up is somewhere around midnight or 1 am and can stay up anywhere from 1-4 hours. We've come to realize that this is not likely to change anytime soon, so Bill and I have begun trying to sleep some during the day. It's quite the challenge, but every once in a while we can catch a little nap to rest up for the fun filled hours each night.

Unfortunately, Mason's IV came out today, so he had to have another one placed. After a couple of attempts, we finally have a replacement. The good news is that it is now in Mason's leg, so he has both hands free. This was really important today as his Aunt JuJu and Uncle Charlos brought him 4 rubber balls to play with. He had such a great time throwing the balls and laughing at the responses he got. That would have been much harder with only 1 hand!!


Mason was also able to go on another wagon ride with his Aunt, Uncle, and Staramama. He continues to have a great time riding around and has smiles to share with anyone who will look. He's quite a celebrity around here, so I'm sure you can imagine there are lots of smiles to share. Those smiles make each day a little brighter.

His oxygen need continues to rise and Mason continues to sleep much of the day. As we arrive on the 2nd anniversary of Mason’s birth, I am amazed at how similar the emotions and the circumstances are. The weeks proceeding Mason’s birth were heavy with worry of whether or not our son would survive to be born. The weeks proceeding Mason’s 2nd birthday have been equally, if not more heavy with worry of whether or not he would survive to see this birthday. And now that we have come upon the day, just like on the day he was born, it is unlikely he will live and if so, for how long.

We face tomorrow with very mixed emotion. We are so glad that our son is still with us, but very heavy hearted knowing that it will be his last birthday. Our hearts are so heavy knowing that every day we have is one day closer to our last day with him. We treasure the cuddles, the laughs, the smiles, the wonderful memories of the last 2 years and will keep those in our hearts forever.