Well, sure enough, 2 days after weaning the steroids again, we have another rough day. Mason's saturations have been low today (in the 60's or so) most of the day. It is the same thing that happened last Saturday, and more than likely, the same thing that will happen every time we wean the steroids. Our hope is that it is temporary and he will recover the next day or so. We shall see how it goes tomorrow.
The one compounding factor is Mason's switch from IV lasix to lasix being given in his g-tube. We switched yesterday and it's possible that the potency or dosing was just not enough to keep up with Mason's fluid intake. As a result, he had extra fluid on his lungs. After an extra dose of lasix (by IV this time), Mason peed off a bunch and was able to rest comfortably, sleeping on the mat of the floor while saturating higher than he had all day (85%). Unfortunately, upon waking up, his saturations went down again and we've had to turn his oxygen concentration up to help concentrate. I am hopeful that once we get through this steroid wean effect, we will be able to turn him down once again.
Rate: 28
Inspiratory Pressure: 18
Inspiratory Time: 0.65
PEEP: 10
FiO2: 70%
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http://www.youtube.com/watch?v=m8bvA3M63G4
Someone sent this to me and I could not help but think of you. Hope it gives you some comfort.
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Angie
Mason not tolerating a steroid wean? He's been there ... and done that. Hope he adjusts soon.
But I'm so glad to read about Mason doing the normal stuff and sleeping through the night (!), and you being able to go enjoy the weather a bit.
MS
Love, hugs and prayers,
Carrie and Krishnan
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