As we wean down on the methadone, Mason is getting more and more aware of what's going on around him and staying awake more (well, unless he has a near death experience like a few days ago). He now has his days and nights straight, and sleeps through the night more often. I am so thankful for all of these improvements, but am extremely exhausted in trying to keep up with my nearly 2 year old as he has so many more cords and tubes to pull on and tie himself up with. This morning, Mason awoke happily at 6am (after both of us slept soundly for about 7 and a half hours!!) and didn't stop until finally going down for a nap at about 1pm. I had a few hours to do what I wanted to do including watching some smut TV (Grey's Anatomy) on the computer and going for a good walk on such a nice day while Staramama stayed with Mason. After those few hours, Mason was up and at 'em again. We took another wagon ride and played on the new mat that PT/OT brought for us for the rest of the day. Mason loved being back on the floor and played for a good 3 hours with Staramama, Mama, and his wonderful nurse. It is so good to see him doing some "normal" things in this anything but normal situation. As I write this, he is fighting going to sleep, but will hopefully do so soon, 'cause I'm about to crash myself! It's been a while since I've had to keep up with a toddler who has things around him to pull on that will get him into trouble! I almost forgot what it was like!
Rate: 28
Inspiratory Pressure: 18
Inspiratory Time: 0.65
PEEP: 10
FiO2: 61%
5 comments:
It's great to hear about normal nearly-two wake-up and nap times and a play time today. Thanks for sharing the good news =). Praying for rest for you, in addition to the usual.
Go Mason, go! May his guardian angels keep nudging him along.
What a lovely vision you've shared with us! Your day reminded me of this little poem:
Two little eyes
Discovering what's new;
Two little hands
Touching everything in view;
A sweet little voice
Asking you why;
A mischievous smile
And a whimpering cry;
Two little feet
Jumping on the floor;
It's Mason's mission,
He's set to explore!
Sleep well tonight little family!
With love and hugs,
Carrie and Krishnan
So good to hear that some things are finally "normal." That must make your heart soar. What an encouragement to see Mason's improvement. Still praying for improvement that will lead you all home.
Kristie
It is so good to hear how this beautiful little boy that is so loved is doing . keep it up Mason . Love you Charlette
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